Closing is a GO!

Confirmed it again this morning! We are scheduled to go to the OR between 12 and 2 for closing! It is a big step, and a necessary one for anything else to happen. We have been warned again that the roller coaster ride is not over and he will get potentially a lot sicker over the next few days. We have to ride it out to move on.

Occupational Therapy came in again today to evaluate him. What she was able to do he did well on. I don't completely understand what she did, but she checked his feet for grip and reflexes. She checked his hand grip and stretched out his arms and legs. Everything checked out, but she did mention some stiffness of the elbows and knees, which was pretty much expected. He got pretty aggravated with her, so she stopped. She hopes once he settles down after surgery, that they (OT/PT) can work with him a couple of times per week on movement and fine motor/oral motor skills.

We'll post more after surgery to let you know how it went. (I can hear the "click-click-click" of the ascending coaster and feel the building anticipation of the next drop...)