Results

Ok, we got the results yesterday afternoon, but things have been nuts (nothing new nuts - just nuts as usual nuts). Well, one new thing. The wireless link went out on the laptop, so I have to go down to the basement to use the computer - it is amazing how just that one extra step makes computer use so prohibitive! Fortunately we got the warranty coverage we almost never get, so we are awaiting the packing from HP to send it off.

Back to the results. Better, as we anticipated, but not quite as much as we were hoping for. He did have some desaturations while sleeping down to 84 (that's the oxygen), so Dr. Macke is reluctant to take him off of the O2 just yet - we didn't really believe he'd get to come completely off of the O2, just maybe during the day, but no dice! He is down to 1/4 liter, so that is a big drop from where we were. He is still having some obstructions, but they were reported as less frequent, shorter and no total obstructions. Now for the big one - the CO2. Remember our first study showed an average of about 57 with peaks in the 90s, last average was 44 with a peak at 53 - Now for this one.......are you ready? Average was 39 with a peak of 48!! Not a huge difference from last time, but look at where we started! He wants us to get another full night study Tuesday, December 18th - so we will get to visit both day and night shift again! I have to put a positive spin on it anyway I can. We actually thought we might skip one month of journeying up to Indy, but that's ok. We will be there November 27th for Neuro, Dec 18th for the SS, and the last week of January for Dev. Peds and another swallow study.

That's the medical news. In other news...you may have wondered why I have not posted or emailed Halloween pictures - b/c normally they would have been up that night. Wellll...the camera has been misplaced, again. And it is not a conspiracy/secret campaign to get a new camera, don't listen to Josh. As soon as I find it, we will get the boys in all of their Halloween finery up for you to see. They were pretty durn cute, if I do say so myself.