Wednesday, November 28, 2007

I didn't realize it had nearly been a week since posting! That is life. Yesterday we were back up at Riley for a Neuro appointment. They are pleased with his progress, and ofcourse that there has been no more evidence of any seizures. We are officially weaning off of the phenobarb. In about 7 weeks, it should be gone. We aren't going back until early May, so we are slowly starting to see some daylight between doctor visits. On a sad note, when we went up to visit the NICU we found out that one of Gabe's module mates passed away sometime in the past month. We knew she had a lot of issues, but always thought there was hope she would go home. Some of you may have known the Coopers. Little Naomi was quite a fighter and we were very sorry to hear she was gone - but also realizing she was frequently an unhappy little girl and at least that is over for her. She was right across from Gabe, so it was impossible not to notice the bad days (sorry nurses, I tried to be oblivious). Our thoughts and prayers are with the family, and also all those who got to know her so well while she was there. I know it isn't easy for any of the docs/RTs/nurses to lose a baby, but I am sure it is rougher when one has been there for so long.

1 comment:

Jane said...

Peg
I still look at your blog sight every day, tho I don't often post.
We praise God every Monday in our Bible Study group for Gabe's progress as we continue to have him on our prayer list.

Love, Jane