The staff had to bring Gabriel back up to 330 on the ECMO last night. (400 is max, he needs to be between 150 and 200 to repair the diaphragmatic hernia). One of the pediatric surgeons, Dr. Rouse, met with us this morning. He said Gabe has been having seizures, which happens in 30-40% of ECMO babies. Also his oxygen supply is low. The ECMO is working properly but his oxygen is at 50 and it should be around 200. Dr. Rouse told us the seizures and low oxygen could be related. They are going to do an EEG and ECHO cardiogram this afternoon to try to figure out the problem. Also will do an ultrasound of the diaphragm. Dr. Rouse thinks Gabriel might have a double hernia, since his left lung is so small. On the positive side, the scans of his head and kidneys showed no bleeding. Bleeding is a side effect of ECMO and would mean the staff would have to take him off ECMO.
Wish we had more positive news to pass along. Hopefully tomorrow will be better. The Drs said ECMO babies have good days and bad days. Thank you for all of your prayers.
Happy Birthday Gabriel!
14 years ago
6 comments:
Josh and Peg -
Thank you so much for creating this blog. Gabe is absolutely beautiful! What a tough a little guy. We are praying for God to continue to give you strength througout these days. I know that the days can be long sitting in the NICU and feeling helpless. Gabe got his strength from you and you need to continue to be strong for him. You don't have to be strong for those of us that love you. Please call me anytime - somtimes it's just nice to step out from all of the alarms - I know it's overwhelming.
You are two of the strongest, most generous and kind people we know. We feel so honored to be a part of your lives and that we get the opportunity to see this beautiful little boy grow up. Gabe will do amazing things in his life - after all, look at the amazing parents he has.
Stay strong and know that Gabe is safe in God's hands. We love all of you very much and can't wait to meet Gabe!
Nick, Claudia, Lauryn and Lyndsey Winsett
Peggy,
MH sent me the link to your blog and I wanted to say you and your family are in my thoughts. Although our stories are quite different, I can still feel your pain as you spend countless hours in the NICU. Just remember to take time for yourself so you can give all you need to for him. And I'm glad to see you are staying at the Ronald McDonald House, they are a blessing! Stay strong Gabriel!
Josh and Peg,
Thank you so much for sharing Gabriel with all of us. He is a precious little fella. Please know that we are lifting you up in our prayers. GOD IS GOOD!!! F.R.O.G.ing!!! (FULLY RELY ON GOD)
The Huntman Family- Derek, Angela, Mackenzie, and Ella
MH sent me your blog address so that I could keep up to date with Gabriel.
Our hearts and prayers are with you. Take care of yourselves so that you are strong for Gabreil and the rest of the family.
I think of you guys so many times a day. Thanks so much for posting so often. Stay strong and know that so many people love you and send such warm wishes and strong prayers. Tell Justin and Kendrick we said hi, and please let me know if there's anything we can do for you!
Love,
Melanie and Family
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