Wednesday, May 30, 2007

Surgery Scheduled!

Dr. Rouse reviewed the films with us and wants to do surgery tomorrow, around 11AM Eastern Time. This news is good and bad. The CT shows he does have lung tissue nearly all the way down, but it is compressed from the front by the liver and the heart, and they don't know how well the lungs are developed - but they are there. They have him rolled over on his belly now with the ventilator going to help expand the lungs and get better volume. Ultimately they need to get the liver out of the way to really see how the lungs can do, which is why they are doing surgery tomorrow.

Here are the risks:
Bleeding: The liver is what needs to be moved and it is easily injured and also bleeds easily. Also he is on heparin, a blood thinner, for the ECMO which increases the risks for bleeding. Even if things go well in surgery, bleeding could start at a later time as well.
ECMO: B/c of the O2 levels being a little on the low side still, they can't wean any lower like they usually would. If he has a lot of trouble after, they won't be able to turn up the support much more than what he is already. Also, they will need to do some of the surgery with him on his back, and some with him on his tummy, which means he will have to be turned with the cannulaes in his neck.
Blood vessels: B/c the liver developed up in the chest instead of the abdomen, the blood vessels developed there too. Moving the liver down poses risks for stretching or kinking the vessels.

They also mentioned that there will probably not be enough room in the abdomen for the intestine once the liver is moved back down, so they will have to leave some of it out and gradually work it back in over a few days (the intestines will be up in a "volcano shaped" cone). I get the impression that this is fairly routine in such a case and this is the least of our worries.

13 comments:

Sylvia said...

Peggy & Josh - & family,

What a beautiful baby boy! And named for strength-which he obviously has, plus the strength he feels from all of you. I am praying for Gabriel's strength to keep growing as he endures everything, and also for you. I'm glad you have so much support up there with you. And the Dr sounds amazing ! Thank you for taking the time to write updates. We watch closely for them and read and re-read them. In prayer- Sylvia

The Hull 6 said...

We pray that the surgery and recovery goes well for Gabe, and that you all can get some rest very soon! All our love,
Andy, Melissa, Noah, Elena, Annalee and Gabriel Hull

Unknown said...

Josh and Peggy,

While you wait, I would like to leave you with God's Word and a Prayer that is in my heart. I hope that both are a source of comfort for you and your family.

Those who hope in the LORD will renew their strength. They will soar on wings like eagles, they will run and not grow weary, they will walk and not be faint. ISAIAH
40:31


May the God of HOPE fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit. ROMANS 15:13

Unknown said...

I'm sorry my entry was too long so it only posted God's Word, so I now share my Prayer.

Lord, sometimes it seems that HOPE is all we have. As life brings its inevitable challenges, I pray that Josh, Peg, and family never lose HOPE. I pray Your Word will take deep root in their hearts, so that Your hope will be their strength and their song regardless of their circumstances. AMEN
F.R.O.G.ing, Angela, Derek, Mackenzie, and Ella

Julie Sutliff said...

Josh, Peggy & Family,
Gabriel is a handsome little fighter! Thank you so much for sharing his life with us. You are all in our prayers and we are rounding up as many prayer warriors as we can find! Please take care of yourselves too. Let us know if there is anything we can do for you!!!!
Julie, Tracy, Jaden & Justin Sutliff

Amy said...

Josh and Peggy,
I used to work at the police department and recieved the link from an officer. I am praying for God's comfort and strength to surround you and your family during this difficult time.
Amy Willis

Perri said...

Praying for Josh. Amy Willis passed on your prayer needs. I have a very good friend whose son had the same defect. She has many valuable links at the bottom of her blog:
http://dancingboysmom.wordpress.com/ if you want to check out some more info on CDH. Riley is a great hospital and our God is awesome and can do all things.

Tina said...

Josh & Peggy,
I got an email prayer request from Amy and just wanted you to know that my family & I will be in prayer for you and Gabriel. He is a beautiful little guy. We have 3 boys, they are a blessing aren't they?!! One thing I know for sure...God is the MASTER physician! He can heal anything, nothing is impossible. Just trust & believe. I'll be praying for HIS amazing strength & comfort for both of you!

Carol & Larry Northenor said...

You will all be in our thoughts and prayers as Gabriel is in surgery tomorrow. Have faith that God will get him throught this.

Sara said...

Peg,
This is Sara from PW. I've been checking Gabriel's progress daily, and am glad to hear that he is doing so much better. Please know that you and your family are in my prayers.

Gail and Dave Wittmer said...

Josh, Peg,& Family,
We will be with you in prayer during surgery. Never doubt that. Then we will get him well and home.
love, Aunt Gail And Uncle Dave.

Jim and MH said...

Just want you to know that our love and prayers are with you and Gabriel today. He's shown his strength, he has the best and most caring Doctors available and you have a wealth of friends and even folks you haven't met praying for you. We all await the good news of his surgery.
Hugs, MH and Jim

Jennifer Sieben said...

Josh, Peggy & family,
Gabe is a beautiful baby!! My whole family and the family here at St. Ben's is praying that his surgery goes well today. Please know you are in my thoughts and prayers daily.
Love, Jennifer

P.S. Give those boys a hug :)