Eventful Day!

OK, it has been a while since I had a lot to report medically. Yesterday was the swallow study. The liquids were not well received (we pretty much expected that) but surprisingly he did fine with the cereal. We were told to stay away from liquids, and that he would likely skip the bottle all together and ultimately just learn from the cup when he is ready for liquids. We have been cleared for purees and she suggested feeding him about two teaspoons of some sort of sweet purees (cereal with breast milk, pears, apples, etc) twice a day to get him more interested in eating by mouth. After that he had a chest xray, which Dr. Rouse told us today was very good.

Today was the flexible bronchoscopy - we didn't stay in the room, (we were willing they just do it with the parents in the waiting room) but we heard he didn't care for it too much. No surprise there. He found that Gabe's adenoids are a little swollen and put him on a nasal spray to help reduce the swelling. Dr. Macke didn't seem to think it was too serious and since everywhere else in his airway looked perfect, Gabe should hopefully grow out of his little obstructive episodes. After the bronch was the EEG and Neuro visit. Nothing but good news there. The EEG looked great and the Neurologist felt that he was almost ready to wean from the phenobarb. We return in November and he will probably start coming off of it then (since he is growing and they haven't increased his dose, he is actually starting to wean now).

Tomorrow is surgery to get the Gtube in and repair his hernia. Surgery is at 1:30, so keep Gabe in your prayers. This so minor compared to all he has been through but ofcourse there are risks with any surgery. Dr. Rouse didn't seem to think Gabe would need to be here more than a couple of days, so hopefully we should be home by the weekend. I think that just about covers it. This afternoon we have been laying low, and napping! My parents are coming over to the hotel, and bringing us Olive Garden take-out for dinner.